TK2d
resources
Because TK2d is so rare, creating and becoming a part of the community is important to help you stay informed, connected, and motivated.
Below are links to patient advocacy groups and community pages as well as sites that have information about TK2d and can help you discuss and understand TK2d and mitochondrial disorders.
We hope to grow this page as more resources are created, so be sure to bookmark this page and check for updates.
Because TK2d is so rare, creating and becoming a part of the community is important to help you stay informed, connected, and motivated.
Below are links to patient advocacy groups and community pages as well as sites that have information about TK2d and can help you discuss and understand TK2d and mitochondrial disorders.
We hope to grow this page as more resources are created, so be sure to bookmark this page and check for updates.
Finding a doctor
Connect With a Mito Expert
Use the database to find an expert in mitochondrial disease
who may help you get diagnosed or provide care.
Search Database
Finding a doctor
Connect With a Mito Expert
Use the database to find an expert in mitochondrial disease
who may help you get diagnosed or can provide care.
Search Database
Patient advocacy groups
United Mitochondrial Disease Foundation
www.UMDF.orgUMDF Organization Facebook Page
UMDF Patient Support Facebook Group
Join the TK2d support group by emailing margaret.moore@umdf.org
Learn more about upcoming UMDF events and patient resources
MitoAction
www.mitoaction.orgMitoAction Facebook Page
MitoAction international hotline:
- 1-888-MITO-411
- mito411@mitoaction.org
Understanding medical words & terms
Genetics Home Reference
Patient-friendly information about genetic conditions from the US National Library of Medicine. Visit siteWhat Did My Doctor Say?
Aims to help health consumers and patients understand "medspeak." Visit siteTalking Glossary of Genetic Terms
Created to help everyone understand the terms and concepts used in genetic research. Many definitions include images, animations, and links to related terms. Visit siteNational Society of Genetic Counselors Glossary
A genetics-based glossary. Visit siteSign up and stay informed
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In addition, all of our future communications will include an opportunity to opt out. WHO WE ARE Click here to learn more about UCB and our efforts to take on TK2d.