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TK2d

resources

Because TK2d is so rare, creating and becoming a part of the community is important to help you stay informed, connected, and motivated.

Below are links to patient advocacy groups and community pages as well as sites that have information about TK2d and can help you discuss and understand TK2d and mitochondrial disorders.

We hope to grow this page as more resources are created, so be sure to bookmark this page and check for updates.

TK2D Resources

Because TK2d is so rare, creating and becoming a part of the community is important to help you stay informed, connected, and motivated.

Below are links to patient advocacy groups and community pages as well as sites that have information about TK2d and can help you discuss and understand TK2d and mitochondrial disorders.

We hope to grow this page as more resources are created, so be sure to bookmark this page and check for updates.

Finding a doctor

Connect With a Mito Expert

Use the database to find an expert in mitochondrial disease who may help you get diagnosed or provide care.
Search Database

Finding a doctor

Connect With a Mito Expert

Use the database to find an expert in mitochondrial disease who may help you get diagnosed or can provide care.
Search Database


Patient advocacy groups

United Mitochondrial Disease Foundation

www.UMDF.org
UMDF Facebook Page
Join the TK2d support group by emailing margaret.moore@umdf.org

MitoAction

www.mitoaction.org
MitoAction Facebook Page
MitoAction international hotline:

MitoPatients (international site)

www.mitopatients.org

Understanding medical words & terms

Genetics Home Reference
Patient-friendly information about genetic conditions from the US National Library of Medicine.Visit site
What Did My Doctor Say?
Aims to help health consumers and patients understand "medspeak."Visit site
Talking Glossary of Genetic Terms
Created to help everyone understand the terms and concepts used in genetic research. Many definitions include images, animations, and links to related terms.Visit site
National Society of Genetic Counselors Glossary
A genetics-based glossary.Visit site

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We’ll keep you motivated and informed about the future of mitochondrial disease, TK2d, and treatment. In the meantime, there’s more to learn:

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WHO WE ARE Click here to learn more about Zogenix and our efforts to take on TK2d.