United Mitochondrial Disease Foundation
UMDF is dedicated to promoting research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.
Muscular Dystrophy Association
The MDA is dedicated to transforming the lives of people affected by neuromuscular disease.
Mitochondrial Disease Action Committee
This nonprofit organization was founded by patients, parents, and Boston hospital healthcare leaders who had a vision of improving quality of life for children and adults with mitochondrial disease.
Powerful patient organizations from different countries in the world have joined forces in their fight to be a voice on an international level and find a cure for mitochondrial disease.
NAMDC (North American Mitochondrial Disease Consortium)
This site provides resources and information for patients and caregivers about mitochondrial disease, including a list of open studies for patients and a list of participating clinical centers.
Genetics Home Reference
National Institutes of Health, US National Library of MedicineThis resource provides consumer-friendly information about the effects of genetic variation on human health.
Mitochondrial Myopathies Information Page
National Institutes of Health, National Institute of Neurological Disorders and StrokeThis site provides information about research, treatment, and patient organizations for mitochondrial myopathies.